Okay, Im starting to lag! A few more days have gone by & Im just now posting. Lets see last time I posted was Monday, so I guess I'll start with Tuesday....
8/15-Theropy Tuesday-I didnt have a nurse & its always a challenge going anywhere by myself with Eric Ryan. I guess its just because I have to take his suction machine plus his diaper bag & carry him. Well I guess its no harder then having 2 babies with you. Anyhow, theropy went well, Eric Ryan was actually in a good mood & let them work with him. During speech theropy he fell asleep like usual. There is another baby with HPE going to the same theropy & hasnt been there in about a month, maybe longer. I asked about her & found she's been in the hospital. Im worried about her right now & hopefully will be able to visit her this weekend. The only problem is her mommy doesnt speak English so I have to take someone with me to translate.
8/16-No nurse again today. Whenever we dont get a nurse & have no apts I sortof have a lazy day. I get to stay in bed with Eric Ryan & we dont take showers till the evening. We dont get to do this much, but I really enjoy this. I really get to cuddle with him & just have lots of alone time. Time I know I will look back on one day & cherish the memories! Well, unfortunately, this day wasnt all pleasent. By evening Eric Ryan became very, very fussy. I went through the routine of what might calm him & nothing worked. He wasnt really crying, just whinning. When I would try & comfort him, he would kick & kick. This went on all night long. He would fall asleep for like 10-20 mins at a time then wake up very mad. Then I get a phone call from the nursing company that the nusre cannot make it tommorow so she will work long shifts Friday & Saturday. Because of lack of sleep I became fustrated & had to get out his stroller & I put him in it & tried to sleep. I knew if I held him I would get more fustrated in him trying to wrestle with me. Its alittle harder here at my sister Aprils since I dont have his crib to lay him in. I dont think I slept more then an hour.
8/17-Its Thurday & we're supposed o go to theropy. By 10am Eric Ryan finally falls to sleep. Im so tired I fall asleep right with him. The last couple of days have been an sdjustment with his new feeding schedule, so I have to set my alarm to remind me, but I know in a week I'll have it down with no alarms. I call the theropy office & tell them we're not going to make it. I know Eric Ryan will be very fussy & he really needs his sleep. So, I sleep & sleep. When I wake up I have this horrible pain in my chest. I must of slept wrong. I cant stand up all the way & in the restroom when I reach for toilet paper it hurts so much I want to cry. So, I walk slow & actually feel like I had surgery in my chest. After about 5-10mins the pain goes away & hasnt come back. That really makes me think it was that I slept wrong. When Eric Ryan finally woke up, it was like nothing ever happened, happy as can be!
Today-We have a drs apt at Eric Ryans pediatrician. He's supposed to get his 2yr shots. But when we got there we find that they dont have it in & we have to go back next week. So, he gets the tb test & draw blood from his little finger for lead levels & so forth. I was worried that he would get upset but he just made this little face like, dude! that hurts! My little Boog-a-boo took it like a champ! Eric Ryan has been sleeping off & on all day. After his bath, the nurse brought him to the room sleeping. She said he was upset in the shower then he knock out as she pu thim lotion & powder. His daddy Eric was here & he got him dressed. Eric Ryan didnt even budge! I think he was just so exhousted from the other day.
Well were caught up, for now!
