Living with HPE
Eric Ryan was born w/ a rare condition, Holoprosencephaly,this is to share our struggles & joys as we live with HPE.
Entry for August 24, 2006

Well it seems like the increase of Eric Ryans medication Kepra has helped! Wednesday he was awake like all day. He didnt want to sleep & was just relaxing. He still had more seizures then before the medication was changed but less then Tuesday. Come 9pm, he wsa sound asleep & slept all night! It was great!


Today we had 2 apointments. The first was with his neurologist. He increased the Kepra again to 1.5cc's in the am & pm.  So we start the increase tomorrow morning. All day he just wanted to sleep. When we moved him, even just a little he would get soooo mad! In teh car he was so upset, he didnt want to sit in his carseat. when I got him out & put him in his stroller he was like nothing happened. On the way back he cried & cried. We had to go straight to theropy & he didnt want to be messd with at all. He would scream if you put him in anyother position then laying down. So, we ended up leaving early. All day he's been like this. Just wants to sleep, but only in certain positions. I went over to Eric's to wash clothes & Ryans cried himslef to sleep. He didnt want to be carried. I felt bad but there was nothing I could do to settle him. Now were at my sisters & he's off & on sleeping. I guess I should be thankful I was able to get a goods night sleep last night!

2006-08-25 06:27:59 GMT
Add to My Yahoo! RSS