Living with HPE
Eric Ryan was born w/ a rare condition, Holoprosencephaly,this is to share our struggles & joys as we live with HPE.
Entry for September 21, 2006
The last few days have been much better. Eric Ryan is sleeping better & been in a lot better mood. Im still really tired & havent had any energy. Ive only been out of the house 2 times. First was to see the new house my parents are building. It was weird though because I took Ryan & had him outside in the middle of the day. That is so not like I do in Texas. The only time we would take him out i the day time was to his dr apts or therapy & we would practically run to the car. But here, the weather has been really nice & I was able to have him out with out worring about him running a fever. Then the 2 nights ago we went to my sister Amandas. We ate dinner & she cute Ryans hair. I think its the shortest its ever been. I was going to set up my computer at her house but realized I left the keyboard! So dumb! So now I have to go by a new one but I dont think expensive. But once I get that done I'll be able to update our website with new pictures. Big Eric also wrote out a little something so Im going to create a new page for him as well.

Today after I get Ryan dressed Im going to take him out for a walk. Im really excited about this. Can you believe we've never been out for a walk before? In my defense its even too hot at night with the humidity and all in Tx.


2006-09-21 19:39:56 GMT
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