Living with HPE
Eric Ryan was born w/ a rare condition, Holoprosencephaly,this is to share our struggles & joys as we live with HPE.
Entry for December 7, 2006
I cant believe its been a few weeks since I last wrote. Boy does time go by fast.

Well, Thanksgiving was great....we had a big breakfest here at my parents with my sisters & thier kids then had a late lunch/early dinner at my dads moms house. It was nice to see family I hadnt seen in a really long time.

Now my days are filled with getting ready for Christmas & Ryan. We just went through a really bad couple of days. RYan didnt sleep more then 30 minutes at a time for 48hrs! I was so tired I wanted to cry, I think I did a few times! But yesturday he fell asleep at about 11am & slept on & off throughout the whole day & night. He is now awake & in a much better mood!

We had our first apointment with Ryans neurologist yesturday aswell. I am so far happy with her. She seems to be a really nice person who worked very well with Ryan.  As soon as she walked in she said, "Oh my gosh isnt he the cutest thing & gezz look at his clothes!" I just laughed & thanked her. I did find out that there as some irregularities in Ryans liver. The dr told me at this point it isnt soemthing to worry about but they do have to monitor it. She said that with children who take so many medications, its bound to happen.

Not much else to report, other then Ryans has teeth coming out all over the place. He has 6 teeth fully ot & about 3 more barely poking through. I made the mistake of putting my finger in his mouth to feel around & he almost bit it off!



2006-12-07 22:51:44 GMT
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