Entry for March 14, 2007
So its been almost 2 weeks since we started Ryan on baclafen. I sometimes think its helping then sometimes dont. Right now he's only on 2 doses a day. In 2 weeks he will be at his full dosage of 4 times a day. Thats when Im told I will see the improvement, if it works.
Our days have been basically the same. Some good & some bad. It seems like everytime I tell someone we had a great day, then next is bad. Like for instance, Monday night was awesome! He slept the whole night. Every now & then Ryan would stir until I realized he wanted to sleep in his bean bag. By the way, best thing I bought him, he luvs it! Then yesturday we went to school where he did great. We 1st tried getting him to play with a switch toy. One sit vibrated & the other lite up whenever you touched them. It was cute because we took off his shoes & placed his feet on the vibrating side. A little girl saw & did the same thing. Then we were able to but him in the Rifton chair (sits him up straight with lots of support & a tray). It was too funny because we tried to get him to play with jello, um nope! He wouldnt have it. I think it was too cold. He kept pulling his hand away whenever I tried to get him to touch it. Then once I tried again & he pulled away before I touched him! Cant see? Whatever!
The rest of the day was great. He was clam & we cuddled & even did some stretches. Come 10pm, the other Ryan came out! He fussed & fussed. Big Eric was finally able to put him to sleep about midnight. Then at about 4am we was up again. Nothing clamed him like normal. The bean bag helped for a little while. And what do you know...its now 9am & he's still at it!!!!!
I just hope he clams down some because we have OT today!!
