Living with HPE
Eric Ryan was born w/ a rare condition, Holoprosencephaly,this is to share our struggles & joys as we live with HPE.
Entry for March 19, 2007
We had a great weekend. We really didnt do much at all but Ryan was so good. Saturday we had plans to go to this out door discovery type center but my mom had other plans. As soon as I got up (Ryan let me sleep till about 9am!!!) mom had me & everyone else in the garage. It really needed to be cleaned. Since we moved into this new house in January the garage has been more of a sorage then anything. So our job was to clean it out. Lots of things went to mine & Erics storage & to Salvation army & to the garbage. Now we can actually parkour cars in there. But we had Ryan out there with us & he was just chillen. He luvs being outside.

That night Eric & I went out to celebrate St Patricks Day. No were not Irish, but hey, its another reason to go out right?! We met up with my sister Amanda & had an awesome time. One of her friends plays basketball so now Eric has someone to play with. We got home pretty late & Ryan we asleep!! Yea!! He slept all night & didnt wake up till about 11am! We were planning on going to church but um, we werent feeling to good. So we hung out outside most of the day with Ryan & my nephews. We finally got to wash the car.

Last night was a little rough, but not too bad. I woke up with Ryan on the floor! He was on his beab bag & slid off! I cuddles with him a little & he fell sleep then I moved him to his crib.

So like I said earlier, we didnt do much but it was great because we were all together & I could really tell Ryan was happy. He even blessed us with a few smiles & playful sighs!!



2007-03-19 16:22:38 GMT
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