Living with HPE
Eric Ryan was born w/ a rare condition, Holoprosencephaly,this is to share our struggles & joys as we live with HPE.
Entry for March 21, 2007
Yesturday was Ryan's 1st school field trip! The class went to see a Steve & Greg concert at Addicot School. This is the school Ryan will most likely be attending in the fall. It was so much fun! The group sing kids songs & get them really involved by dancing & singing along. It was so cute to see all the kiddos there in their kidkarts trying to move around & dance to the music. Lots have severe medical conditions but you could see the joy on their faces. I was a little sad that Ryan was asleep when we got there. The Pre K teacher, Crystal, came up to us & was like "I'm never gonna see him awake". Then right when the music started he woke up in an awesome mood! We were able to dance & sing along with the other kids! Chelsea, Joe & Julianna were also there. It was great becaue afterward we were able to all take another tour & Chelsea was able to talk with Crystal. Julianna will probably be attending when she's 3.

The only downer was the weather. We got a cold front in & it started raining right when we were leaving. Then I had to go pick up some of Ryan's medications & the pharmacy we go to doesnt have a drive through. Ryan got irritated because I covered him with a blanket, which he hates!

Today it's raining a little again but should be the last day of it. We have Ot again today so I hope it stops before then.

Oh ya, Ryan's seizures have been acting up a little the last few days. But I think he may be comming down with something. He has low grade fevers & is gagging a little with his feeds. SO I just have to keep an eye on it.



2007-03-21 17:08:25 GMT
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