Living with HPE
Eric Ryan was born w/ a rare condition, Holoprosencephaly,this is to share our struggles & joys as we live with HPE.
Entry for May 18, 2007
The past week or so have been busy. We decided to get our own place & finally move out of my parents house. So, Ive been on the hunt for an apartment. We had been talking about buying a house & even looked at some. But in the end decided it best to wait another year or so/ So, Ive been on the apartment hunt. It hasnt been easy finding something that I really like that is within a reasonable price. But we finally agreed on 1 & we'll find out mext week if we're in or not. Its in a good location, close to Eric's job & where Ryan will be going to school in the fall. If its God's will, we'll get in, if not I'll just have to deal with living here at my moms. Dont get me wrong, its not bad living here, just feel time we need our own space. My sister & her 3 kids are also living her so its pretty crazy here most days.

This past weekend was my 1st dance comepetition. I was so excited & not really nervous believe it or not. I has a blast! It was such a rush being on stage again! It felt even better knowing Eric & Ryan we're in the crowd cheering me on! And guess what? We got 1st place!!!! Memorial weekend we're going to be in L.A for a competition at Disney Resort, I cant wait!!!

Ryan's throwing up spell seems to be completey gone. The last few says we have had no signs og gagging which is awesome!

On Tuesday is class had a field trip to the zoo. The Fresno Zoo isnt so great but it was a beautiful day & Ryan slept most of the time. Something happened though that was a little weird. Out of no where Julianna (also HPE) started crying. This made me look at Ryan to see if he was of, a second later he began having a seizure. Thank God it wasnt bad, only lasted about 15 secs. But about a second after he stopped, Julianna stopped crying & soon they were both a sleep. Chelsea & I just looked at eachother like wow. It seemed as if Julianna knew what was coming for Ryan. It could have been just one of those things, but it was sure a little weird.

Yesturday we had physical theropy. Ryan was in a funny mood. He was sassing the therapist & even seemed to be arguing with her. She would say "Ok, time to roll over" or "Tummy time" he would respond with a high pitch complaint. He didnt cry or fit too much. Just really showed he was not liking what she was making him do but would go ahead & let her do it. It was too funny! The rest of the day he ws in a pretty good mood..until I got back from practice. Eric had been letting him sleep in the bed & moved him to his crib when I called to say I was on my way home. Ryan was not too pleased. He just loves sleeping in our bed. He finally got over it & fell asleep.

We're thinking about getting him his own big boy bed. Maybe a full size bed. He sleeps much better in a bed then his crib, maybe cause he has more room to move around.

Today we're just relaxing. No appointments or apartment looking.



2007-05-18 18:01:49 GMT
Comments (1 total)
Author:Anonymous
Ryland also loves sleeping in mommy and daddy's bed, most of the time he kicks us both out.lol
--Summer mom to Ryland 2 (SL-HPE)
<http://www.caringbrigde.com/sd/ryland>
2007-05-18 22:35:13 GMT
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