Entry for December 11, 2007
So Ryan is now being labeld as a "Preschool dropout" Last week we only went to school 2 days, but Ryan just wasnt being himself. One day he wouldnt sleep at night & we were just too tiredt o get up, the 2 days we did go, he slept the whole time.
On top of that, his sodium was out of wack. I started noticing Monday I noiced he was urinating as much as normal so I held his night dose of DDAVP. I was certain that he was going to be soaked in the morning & it was so I gave him his DDAVP. Well Tuesday was the same as far as urinating goes, very little & he slept all day at school. Again I skiped the night dose of DAVP, but the next morning, Wednesday, he wasnt soaked, very little. So I skipped the DDAVP & called his Endocranologist & left a meddage for the nurse. I didnt get a call back til Thursday evening!
I expalined everything that was going on & was releaved that Ryan wasnt showing any symptoms of distress, like swelling or discoloration, just the sleeping alot, but then again he wasnt sleeping at night. We allready had an apt with them on Friday afternoon & the nurse asked for us to go about 11am so we could have the results by our 2pm apt. I asked her if we had to stay the whole time or if I could leave inbetween. Her answer "Well you dont want me to have to report you to CPS". I was tired or just plain stupid because at the moment I had no idea what she was talking about. "Whats CPS?" I asked. When she told me I ws in shock, I ws stumbling my words, but to top it off, I didnt defend myself!!!! After we got off the phone, it hit me. At first I cried, for like 15 minutes! I had never had anyone tell me anything like that before! I couldnt believe anyone would think I was somekind of neglective parent! Then, I got pissed! How dare she tell me that! She didnt know me or my son! I had never met her as a matter of fact that was the 1st time I ever spoke to that nurse! If I were to be guilty of neglect it wouldbe to the neglect of myself! I always put Ryans needs & wants over my own. I have had numerous drs & nurses say they wished all parents were like me! I tried calling the office back but it ws closed, but at the apt, I let the dr know exactly how I felt. She didnt even know the nurse had said that & the nurse of corse was not in that day! But trying to cover for the nurse the dr said "Well you would be suprised at what some parents do" I totally agreed with her but also made it clear that I AM NOT SOME PARENT!!!!! I maybe half dead at some apts & looking like I hadnt combed my hair in days but Ryan always looks great. Im there every single day at preschool with him & as a matter of fact the only parent there more then once a week. Ryan goes everywhere with me & if its too cold or too hot for him, we just dont go! For all of his medical problems, Ryan is as healthy as he can be, out of the hospital for 1yr & 10months (other then his fundo surgery in Oct which he had no complications & was released 2days after surgery) I may always be late for things like family get togethers & even church but never to one of Ryan apointments. I buy a new outfit every 2 months (if that) but Ryan, well he had a closet full of clothes, more then his father & I put together. I dont mean to sound big headed or I think Im all that, but I know Im a good mom! If Im horrible at everything else, a mom is one thing Im good at!
On another note.....
Today Santa visited Ryans school!!!!!
It was somuch fun! The Air National Guard went to visit & brought Santa & snow with them! It was so funny to watch the kids. Some screamed with joy, others in fear! LOL! There was Christmas music playing as he walked in & it got loud! It was great! All the kids were in the all purpose room & Santa went around & shock each ones hands (well those who let him) Then he went into one of the classrooms were he passed out stuffed animals & took pictures. After the kids went outside were there was snow!!! They layed out snow over a little hill & all the kids that could slide down with a teacher, aide or parents. It was so much fun!!! But RYAN MISSED IT ALL!!!! He slept through the whole thing!!!!! We tired & tried to wake him up, but nope. Oh well, I'll show him the pictures later!
